Patient Partnerships and Training Manager
The Canadians Seeking Solutions to Overcome Chronic Kidney Disease (Can-SOLVE CKD) Network is a pan-Canadian network, one of the Canadian Institutes of Health Research (CIHR) Strategy for Patient Oriented Research (SPOR) networks in chronic disease. The activities and accomplishments of this network will benefit Canadians by promoting a cultural shift from care which is disease-centered and provider-focused to care which is patient-centered, informed by evidence, and coordinated across the health care system.
The network consists of a large and multi-disciplinary research teams across the country with a core operations team that supports day-to-day activities and a slate of working groups and committees to ensure key deliverables are produced on time and within budget. The Patient Partnerships and Training Manager is responsible for leadership of patient partnership activities within the network, including the Patient Governance Circle, as well as the training and capacity development initiatives within the Training and Mentorship Committee. The key responsibilities of this position are described below. This position reports to the Executive Director of the network, with some work direction from the Patient Partnerships & Training Lead.
Responsible for overall Can-SOLVE CKD network patient partnership activities, enabling and ensuring the patient voice in all aspects of the Network. The incumbent will;
- Provide expertise in patient partnerships with excellent knowledge of the national and international landscape for patient engagement in research, e.g. SPOR (Canada), PCORI (US), INVOLVE (UK) etc.
- Support the current 18 research projects, 5 core infrastructures, and governance structures of the network with respect to patient partnership strategies.
- Continue to build awareness about patient-oriented research with key network stakeholders, including: Kidney Foundation of Canada (KFOC), provincial SPOR SUPPORT Units and funding partners.
- Work to continue to implement schemes for evaluation of patient partnership activities within the network and evolve these as the network evolves.
- Work with patient partners and project teams to facilitate meaningful engagement in the Can-SOLVE CKD research projects.
- Lead annual patient engagement check-in calls between all 18 research projects and their patient partners – creating a supportive environment for open dialogue.
- Advise and supports engagement of patient partners in all aspects of the network’s infrastructure including (i.e., Canadian Nephrology Trials Network - CNTN).
Patient Governance Circle
- Provide leadership and support to the Patient Governance Circle (PGC), a governance body of the Can-SOLVE CKD network.
- Coordinates recruitment of patient partners on the PGC, National Patient Network, working groups, research project teams, and other components within the Network.
- Work with PGC members and co-chairs to plan and organize meetings, ensures documents such as Terms of Reference etc. are kept current and reviewed on an annual basis.
- Support strategic planning efforts and growth initiatives among the PGC.
Training and Capacity Development
Responsible for leading the creation, implementation, evaluation and monitoring of capacity development initiatives for the network’s key stakeholders: patients, researchers, health care providers and policy makers to ensure their successful uptake and integration of CIHR’s Strategy for Patient Oriented Research.
- Leads the Research Training and Mentorship Committee (TMC) – a core infrastructure –on the continued implementation of the training strategy for Can-SOLVE CKD.
- Oversees the training budget for the committee;
- Delivers training initiatives, including the Foundations in Patient Oriented Research training, across the network.
- Leads the continued development and implementation of an evaluation framework for individual learning branches and TMC as a whole.
- Other duties and responsibilities as assigned, including participation in the network’s sustainability planning.
Experience Skill & Experience
- University degree in Social or Health Sciences (graduate degree preferred)
- Minimum of two years’ experience in a leadership position in community/stakeholder health research environment
- Minimum of two years’ experience in coordinating complex projects, including experience leading multi-stakeholder initiatives
- Proven record of strong organizational and excellent communication skills, including interpersonal, written and facilitation
- Proven commitment to the values of equity, diversity and inclusion
- Excellent interpersonal communications skills with proven writing proficiency
- Demonstrated success in leading multistakeholder teams
- Strong strategic/analytical thinking and attention to detail
- Ability to work in a virtual team environment
- Proficient in Microsoft Office
- People management experience preferred
- Required fluency in English; French (highly beneficial)
**All applicants should submit a cover letter explaining their interest in the role and qualifications**
Position Close Date: June 30, 2021